A shared position on the EHDS proposal
VUB discusses the EHDS proposal with the LIBE committee of the European Parliament
On 9 January 2023, the Health and Aging Law Lab (HALL) at Vrije Universiteit Brussel (VUB), WP2 (legal) leader of the FACILITATE project, was invited to an informal meeting with the Committee on Civil Liberties, Justice and Home Affairs (LIBE) of the European Parliament to discuss the Proposal for the Regulation of the European Health Data Space (EHDS).
HALL members shared their positions on the EHDS Proposal and raised specific issues that require further consideration in the next versions of the legislative proposal. These issues included, among others, lack of clarity of several key definitions, the EHDS status as a lex specialist for certain provisions of the GDPR, individual rights in the secondary use of electronic health data, and the protection of health data of deceased persons. HALL members also provided written feedback with suggestions to amend the current proposal.
The establishment of the European Health Data Space will have a significant influence on the governance models of electronic health data in the EU and will provide enormous potential for facilitating the sharing of health data for scientific research. Therefore, it is closely linked to the objectives and activities of FACILITATE project.
HALL offered opinions in this meeting exclusively on its own behalf, but was able to benefit from the contributions of some other partners of the FACILITATE project.
