Glossary
To go-in-depth with FACILITATE
Enter the world of our patient-centered project! Use this glossary of commonly used terms, their meanings and some insights to better understand responsible return of clinical trial data to patients and its reuse.
- Anonymisation
- Anonymised data
- Case Report Form (CRF)
- Clinical Outcomes Assessment (COA)
- Clinical Trial
- Clinical trial data
- Clinical trial phase
- Direct Data Capture (DDC)
- EFPIA
- General Data Protection Regulation (GDPR)
- Innovative Health Initiative (IHI)-Innovative Medicines Initiative (IMI)
- Observer reported outcome (ObsRO)
- Patient-centered
- Patient engagement
- Patient experience data
- Patient-focused drug development
- Patient perspective
- Patient-reported outcome (PRO)
- Pseudonymisation
- Pseudonymised data