News
The Patient as an Expert, even in RoIPD
FACILITATE: A Guest of I-PWG
On 9 June, Prof. Johanna Blom, FACILITATE Coordinator, and Daniela Quaggia from Cittadinanzattiva - Active Citizenship Network (ACN) presented the work and progress of the FACILITATE project to the Industry Pharmacogenomics Working Group...
Together, with a look to the future
Here we are at the closing event of FACILITATE. On June 4–5, 2026, the Fondazione Collegio San Carlo in Modena will host the final conference of FACILITATE – “LOOKING TO THE FUTURE” From Project to Practice:Operationalizing Reciprocity, Participant-Centered Clinical...
RoIPD: a strategic imperative
Johanna Blom (FACILITATE Coordinator, UNIMORE) and Daniela Quaggia (Cittadinanzattiva-Active Citizenship Network) have been invited to present the work carried out by the FACILITATE consortium on the Return of Individual Participant Data (RoIPD) during an...
The triple strength of RoIPD by design
Now in its 17th year, SCOPE returned February 2-5, 2026, in Orlando, FL, bringing together the full clinical research ecosystem for four high-impact days of discussion, strategy, and networking. The 2026 program expands coverage of in-demand topics like Development...
Industry embraces return of patient data framework for clinical trials.
The time to strike is now In December 2025, the FACILITATE project organized an event in the European Parliament to make European policymakers more aware of the project’s outcomes, hosted by MEP Vytenis Andriukaitis. On this occasion, Johanna Blom, FACILITATE’s...
Setting a new standard for Patients’ Rights in Europe: watch the event
On Thursday, December 4, the FACILITATE closing event Returning Individual Participant Data in Clinical Trials ‘by Design’. Setting a new standard for Patients’ Rights in Europe took place at the European Parliament in Brussels.The event was designed to...
From ethics and laws to day-to day practice
The professional video summary of the event, produced by journalist Mariam Zaidi, distills the key messages, why RoIPD matters, and how the FACILITATE Principles turn ethics and law into day-to-day practice. Watch the interview...
Return of data, where Principles matter
On Thursday, December 4, the FACILITATE closing event Returning Individual Participant Data in Clinical Trials ‘by Design’. Setting a new standard for Patients’ Rights in Europe took place at the European Parliament in Brussels. The event was highly...
FACILITATE White Paper: a new standard for the return of data
The FACILITATE White Paper on the return of individual participant data (RoIPD) in clinical trial is online! This relevant document turns “what if” into a practical roadmap, showing how “Why return individual data?” connects to real-world steps that make sharing back...
Don’t miss our last video podcast: The legal side of data return
The podcast dedicated to the role of the legal and ethical framework behind FACILITATE is finally online! Wenkai Li, legal researcher at Vrije Universiteit Brussel, and Ciara Staunton, legal and ethical researcher at UNIMORE University, go deep into the legal...
Watch the webinar – Where do we stand with the Return of Individual Participant Data?
The FACILITATE webinar on the Return of Individual Participant Data, which took place on 25 June, is now available online.We invite you to follow our Stakeholders Virtual Roundtable, with 379 people registered and 186 participants (Patients, Companies, Researchers,...
