This project has received funding from the Innovative Medicines Initiative
Friday, 19 April 20242:00 to 3:30 pm CET Increasing stakeholder engagement and empowering participants to FACILITATE the effective return of clinical trial data Join us in the vision of this insightful overview and roundtable discussion of the FACILITATE...
The return of individual data to clinical trial participants as a means of patient empowerment was once again featured at the annual Patients as Partners in Clinical Research US Conference, which took place in Philadelphia, Pa, on March 20-22nd. The theme of this...
Maximizing the societal benefit and lasting impact of clinical trials. Increasing stakeholder engagement and empowering participants to FACILITATE the effective return of clinical trial data Event Date: Friday, 19 April 2024Event Time: 2:00 to 3:30 pm CET REGISTER...
On November 29, at the Clinical Trials Europe meeting held in Barcelona, FACILITATE made a significant contribution to this important annual gathering, which for two days becomes a nexus for patients, health authorities, ethics committees, pharmaceutical companies,...
Event Date: Thursday, 28 March 2024Event Time: 9:00 to 10:00 a.m. EST Join us for an overview of TransCelerate’s Individual Participant Data Return (iPDR) Package, a comprehensive set of materials that provide general considerations to enable data return to...
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KEYWORDS: Governance; digital health data; preferences; Europe; discrete choice experiment; data use; data sharing; secondary use of data
KEYWORDS: health data-sharing, clinical trials, decision-making, informed consent, social alliance
In the last two months, FACILITATE researchers of Workpackage 3 have organized and managed three different consultations with patients and experts about granularity of choice in Secondary Use of Data in the clinical trial context.The first consultation – entitled...
From October 23-27 2023, Horizon Europe 2024 - the European Research Promotion Agency's (APRE) annual event - took place with 5 days of information meetings on the themes and calls of the Framework Program for Research and Innovation.It was a relay of information...
On 17 October, 2023, Johanna Blom, Coordinator of FACILITATE, Véronique Poinsot, Project Leader of FACILITATE and Swapna Pothula, member of the TransCelerate initiative, participated at Scope EU Congress in Barcelona, in a panel entitled “Demystifying Individual...
On 15 October 2023, the Accademia del Paziente Esperto EUPATI (AdPEE) held an information event dedicated to the European FACILITATE project at the Rome Scout Center in Rome. Sabrina Grigolo, member of the board of AdPEE, together with some EUPATI Patient Experts -...
