J.M.C. Blom

White paper on RoIPD: Highlights

White paper on RoIPD: Highlights

The FACILITATE project seeks to address the ethical and legal challenges surrounding the return of individual participant data (RoIPD) from clinical trials to participants aged 18 and older within the European Union (EU). Although there is growing recognition of the...

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White paper on RoIPD: full text

White paper on RoIPD: full text

Return of Individual Participant Data (RoIPD) from clinical trials can empowerparticipants, improve health decision-making, and strengthen trust in research.However, RoIPD remains rare in the EU due to unclear responsibilities, limitedinfrastructure, and a lack of...

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