This project has received funding from the Innovative Medicines Initiative
Veronica Popa, Digital Patient Engagement Manager at EURORDIS Rare Disease Europe, explores patients' views on the return and reuse of clinical trial data, explaining how it impacts their lives and why it is a priority to respect their needs and wishes.
Johanna MC Blom, deputy coordinator of FACILITATE, traces the path of the project by explaining its rationale, analysing the context in which it was born, anticipating the concepts of ethical and legal frameworks, and emphasizing the benefits to stakeholders and...
