Role in the Facilitate Project
EURORDIS will bring the voice of patients by conducting a research overview into existing studies on the views of patients in this area. This research overview will be conducted by Rare Barometer. This information will be then completed with specific feedback from the EURORDIS’ Digital and Data Advisory Group(DAG). The DAG is a group of legal experts and patient volunteers who will follow the progress of the project from the start and will bring their knowledge and perspective to the project. EURORDIS will be involved in WP1, WP2, WP3, WP5 and WP6 .