Month: March 2023

FACILITATE workshop on its developing ethical frameworks

FACILITATE workshop on its developing ethical frameworks

On 15 and 16 March, the leaders of work package 3 (WP3) held a meeting with partners at Eurac Research, Bolzano (Italy). The meeting was convened to discuss key elements of the ethical frameworks (the ethical framework on return of clinical trial data and the ethical...

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FACILITATE at the Rare Disease Day

FACILITATE at the Rare Disease Day

On 1 March 2023, Prof. Dr. Johanna Blom has been invited to present FACILITATE project and its challenges at the 3rd International Conference on Rare Diseases: Greek Chapter, 2023, Athens in the Session “Flash Updates of RD Flagship Initiatives” The conference focused...

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FACILITATE stakeholders’ meet in Cape Town

FACILITATE stakeholders’ meet in Cape Town

On 21 February 2023, representatives of WP3 held a FACILITATE stakeholder workshop at Stellenbosch Medical School, Cape Town, South Africa The workshop was hosted jointly with the Stellenbosch University Research Ethics Office and the Office of Research Integrity. The...

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A shared position on the EHDS proposal

A shared position on the EHDS proposal

VUB discusses the EHDS proposal with the LIBE committee of the European Parliament On 9 January 2023, the Health and Aging Law Lab (HALL) at Vrije Universiteit Brussel (VUB), WP2 (legal) leader of the FACILITATE project, was invited to an informal meeting with the...

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Health-related data protection

Health-related data protection

In accordance with resolutions 75/282 and 76/552 of the UN’s General Assembly, FACILITATE partner Privanova joined the expert panel of the Ad Hoc Committee tasked with drafting a Comprehensive International Convention on Combating the Use of Information and...

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