To ensure that Ireland can benefit from data driven research, on 28 March 2025 the Royal College of Surgeons in Ireland (RCSI) convened a one-day conference’s to co-create practical, sustainable solutions that can support responsible and timely data use. This...
Fabrizio Cornia
Demystifying The EU Health Data Space
On 3 February 2025, Luca Pani, FACILITATE coordinator, delivered a comprehensive keynote presentation at the two-day Clinical Research Data Sharing Alliance-CRDSA’s 2025 Summit, exploring the challenges and opportunities of the European Health Data Space (EHDS). His...
Watch the webinar – Understanding the secondary use of clinical trial data
The FACILITATE webinar Understanding the secondary use of clinical trial data, which took place on 11 December, is now available online. We invite you to follow our Stakeholders Virtual Roundtable, which explored the importance of the secondary use of clinical trial...
Opportunities and challenges of person-centric research
The European project FACILITATE has been showcased at the 10th annual Clinical Monitoring & Patient Recruitment Retention Summit on 20-21 November 2024 in Barcelona, with the topic: Advancing Patient Centric Clinical Trials: the case of IHI FACILITATE, returning...
Let’s FACILITATE Webinar 2024
Understanding the Secondary Use of Clinical Trial Data: perspectives from patients, clinicians, industry, and regulators We are delighted to invite you to the II LET’s FACILITATE 2024 Webinar, an engaging exploration and roundtable discussion centered around the...
An ethical-legal framework built on social alliance
At the 42nd National Congress of the Italian Society of Pharmacology, which was held in Sorrento, Italy, November 13-16, 2024, Veronica Rivi, from the Department of Biomedical, Metabolic and Neuroscience Sciences at UNIMORE and a member of FACILITATE, presented a...
Searching for reconciliation between law and ethics
At the 9th Conference of the European Association of Health Law, held at the University of Warsaw from September 18-20, Wenkai Li, a researcher from Vrije Universiteit Brussel, delivered an insightful presentation titled “Rethinking individual autonomy in the...
Clinical trial participants: no more study subject, but research partners
At the Clinical Research As A Care Option (CRAACO) Conference held in Philadelphia on September 16-18, 2024, Nadir Ammour, Global Lead, Clinical Innovation & External Partnerships, Sanofi and co-leader of the FACILITATE project, was the guest speaker in the panel...
Work in progress for patient-centricity
Download ENG PDF Download ITA PDF On June 20th, Marta García Manrique, R&D. Chief Patient Officer in Servier and representative in the FACILITATE consortium, presented the main features of the IHI project at the “Patient Centricity & Engagement Conference” in...
Together, for more equitable health
Download ENG PDF Download ITA PDF Once again IHI-FACILITATE project had a prominent space among the efforts devoted to responsible data sharing at the Drug Information Association (DIA) Global Annual Meeting hosted in San Diego from June 16-20, 2024. On Wednesday,...
Staunton C et al. Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participants. Front Med 2024; 11:1408600
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Episode 3. What patients really want?
Veronica Popa, Digital Patient Engagement Manager at EURORDIS Rare Disease Europe, explores patients' views on the return and reuse of clinical trial data, explaining how it impacts their lives and why it is a priority to respect their needs and wishes.














