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Maximizing the societal benefit and lasting impact of clinical trials - FACILITATE

Watch the webinar – Maximizing the societal benefit and lasting impact of clinical trials 

Apr 22, 2024 | News, Webinars

Friday, 19 April 2024
2:00 to 3:30 pm CET

Increasing stakeholder engagement and empowering participants to FACILITATE the effective return of clinical trial data 

Join us in the vision of this insightful overview and roundtable discussion of the FACILITATE project and its promising innovations to enable individual data return to clinical study participants.

We delved into the progress achieved to date and outline our next steps. What set this session apart is the inclusion of diverse perspectives from key stakeholders. Alongside patient testimonials, we heard from clinicians, representatives from companies, and regulatory bodies. This varied panel ensured a comprehensive discussion that reflects the project’s multidimensional impact and fosters collaboration among stakeholders.

The webinar included

  • an introduction to FACILITATE and its potential innovations.
  • a concise journey through achievements and future steps of the FACILITATE project.
  • a Stakeholders Virtual Roundtable focused on how the project could positively impact their lives (as citizens and patients) or professional endeavors (as researchers, clinicians, pharma, etc).

Panelists

  • Johanna Blom, Professor of Psychobiology Pediatric & Behavioral Neuroscience, University of Modena, and IHI FACILITATE Coordinator
  • Jean Stimola-Sposaro, Director, Bristol Myers Squibb Global Industry, Human Advocate for Equity in Access, and Informed Decision Making

Roundtable

  • Nuala Ryan (Moderator) Clinical Research Consultant and Patient Advocate, Takeda
  • Paweł Wrona, Neurology Specialist, Investigator, Clinical Research Manager, Academic Assistant, Krakow University Hospital
  • Manuel Franco-Martin, Director of the Research Group of Institute of Biomedicine of Salamanca (IBSAL), Spain
  • Dorica Dan, Patients’ Representative, NoRo Center for Rare Diseases, Romania
  • Nadia Malliou, Patients’ Representative, Pain Alliance Europe and Hellenic League Against Rheumatism, Greece
  • Abba Elizabeth Theogaraj, TransCelerate Representative, PhD Regulatory Senior Group Director, Roche
  • Andrea Manfrin, Deputy Director of Clinical Investigations, Medicines, and Healthcare Products Regulatory Agency, UK

Recent news

">Let’s FACILITATE WEBINAR 2024

Maximizing the societal benefit and lasting impact of clinical trials. Increasing stakeholder engagement and empowering participants to FACILITATE the effective return of clinical trial data Event Date: Friday, 19 April 2024Event Time: 2:00 to 3:30 pm CET REGISTER...

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">For data return, the time is ripe

On November 29, at the Clinical Trials Europe meeting held in Barcelona, FACILITATE made a significant contribution to this important annual gathering, which for two days becomes a nexus for patients, health authorities, ethics committees, pharmaceutical companies,...

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">Enabling Individual Participant Data Return (iPDR): An Overview of TransCelerate’s Individual Participant Data Return Package

Event Date: Thursday, 28 March 2024Event Time: 9:00 to 10:00 a.m. EST Join us for an overview of TransCelerate’s Individual Participant Data Return (iPDR) Package, a comprehensive set of materials that provide general considerations to enable data return to...

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