Event Date: Thursday, 28 March 2024Event Time: 9:00 to 10:00 a.m. EST Join us for an overview of TransCelerate’s Individual Participant Data Return (iPDR) Package, a comprehensive set of materials that provide general considerations to enable data return to...
Fabrizio Cornia
let’s FACILITATE – Year 3 Issue 1
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Frimpong E et al. Need for Speed: Leveraging the Power of Functional Encryption for Resource-Constrained Devices Peer-reviewed Epublication, presented at the 9th International Conference on IoT, BigData and Security (IoTBDS’24)
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Staunton C et al. Ethical and social reflections on the proposed European Health Data Space European Journal of Human Genetics. 2024;32:498-505
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Biasotto R et al. Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries. J Med Internet Res 2023; 25: e47066
KEYWORDS: Governance; digital health data; preferences; Europe; discrete choice experiment; data use; data sharing; secondary use of data
Blom JMC et al. The nexus of social alliances and diverse moral domains: a bedrock for participatory clinical research. Front Med 2023; 10:1250247
KEYWORDS: health data-sharing, clinical trials, decision-making, informed consent, social alliance
For secondary use, trust is the key word
In the last two months, FACILITATE researchers of Workpackage 3 have organized and managed three different consultations with patients and experts about granularity of choice in Secondary Use of Data in the clinical trial context.The first consultation – entitled...
A technological process with a legal-ethical core
From October 23-27 2023, Horizon Europe 2024 - the European Research Promotion Agency's (APRE) annual event - took place with 5 days of information meetings on the themes and calls of the Framework Program for Research and Innovation.It was a relay of information...
Demystifying Individual Participant Data Return
On 17 October, 2023, Johanna Blom, Coordinator of FACILITATE, Véronique Poinsot, Project Leader of FACILITATE and Swapna Pothula, member of the TransCelerate initiative, participated at Scope EU Congress in Barcelona, in a panel entitled “Demystifying Individual...
Expert patients meet FACILITATE
On 15 October 2023, the Accademia del Paziente Esperto EUPATI (AdPEE) held an information event dedicated to the European FACILITATE project at the Rome Scout Center in Rome. Sabrina Grigolo, member of the board of AdPEE, together with some EUPATI Patient Experts -...
let’s FACILITATE – Year 2 Issue 2
Towards the second phase FACILITATE is growing as a collaborative consortium and laying the groundwork for the new phase of the project with more tangible outputs. So far, it has been a great cooperative effort towards the definition of pragmatic use cases and...
let’s FACILITATE – Year 2 Issue 1
Towards harmonization We have just entered the second year of FACILITATE, and are ready to face the new challenges that the project poses and to work together to realize our goals. Collaboration, harmonization, and alignment will be the guiding words of our next...