This project has received funding from the Innovative Medicines Initiative
The FACILITATE White Paper on the return of individual participant data (RoIPD) in clinical trial is online! This relevant document turns “what if” into a practical roadmap, showing how “Why return individual data?” connects to real-world steps that make sharing back...
The podcast dedicated to the role of the legal and ethical framework behind FACILITATE is finally online! Wenkai Li, legal researcher at Vrije Universiteit Brussel, and Ciara Staunton, legal and ethical researcher at UNIMORE University, go deep into the legal...
The FACILITATE webinar on the Return of Individual Participant Data, which took place on 25 June, is now available online.We invite you to follow our Stakeholders Virtual Roundtable, with 379 people registered and 186 participants (Patients, Companies, Researchers,...
Summary of the Opinion paperThe nexus of social alliances and Diverse Moral Domains: a bedrock for participatory clinical research by Johanna Maria Catharina Blom, Veronica Rivi, Fabio Tascedda, and Luca Pani. Front Med. 2023; 10...
How can we truly put patients first when it comes to health data? Professor Johanna Blom, Coordinator of the FACILITATE project and Professor of Psychobiology at the University of Modena, shares her vision in this new video released to mark the 19th European Patients’...
On June 25, 2025 join us and participate in the FACILITATE public webinar! The event will feature a stakeholders virtual roundtable, where we aim to explore the FACILITATE work on the Return of Individual Participant Data (RoIPD). Alongside patient testimonials, we...
Exploring the benefits of health data sharing for patients, healthcare systems, and medical research at the EU level 15 May 2025 | European Parliament, Brussels (Belgium) 📅 Date: 15 May 2025📍 Location: Room A3H1 | European Parliament, Brussels🎟 Register here now...
Brussels, 24 April 2025 - A thought-provoking panel titled “From Data Return by Design to Ethical Secondary Use: A Scalable Approach to the Governance of Clinical Trial Data, at the 3rd Health, Law and Technology (HELT) Symposium brought together academic, regulatory,...
To ensure that Ireland can benefit from data driven research, on 28 March 2025 the Royal College of Surgeons in Ireland (RCSI) convened a one-day conference’s to co-create practical, sustainable solutions that can support responsible and timely data use. This...
On 3 February 2025, Luca Pani, FACILITATE coordinator, delivered a comprehensive keynote presentation at the two-day Clinical Research Data Sharing Alliance-CRDSA’s 2025 Summit, exploring the challenges and opportunities of the European Health Data Space (EHDS). His...
The FACILITATE webinar Understanding the secondary use of clinical trial data, which took place on 11 December, is now available online. We invite you to follow our Stakeholders Virtual Roundtable, which explored the importance of the secondary use of clinical trial...
The European project FACILITATE has been showcased at the 10th annual Clinical Monitoring & Patient Recruitment Retention Summit on 20-21 November 2024 in Barcelona, with the topic: Advancing Patient Centric Clinical Trials: the case of IHI FACILITATE, returning...
