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Staunton C et al. Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participants. Front Med 2024; 11:1408600
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Publications
Frimpong E et al. Need for Speed: Leveraging the Power of Functional Encryption for Resource-Constrained Devices Peer-reviewed Epublication, presented at the 9th International Conference on IoT, BigData and Security (IoTBDS’24)
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Staunton C et al. Ethical and social reflections on the proposed European Health Data Space European Journal of Human Genetics. 2024;32:498-505
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Biasotto R et al. Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries. J Med Internet Res 2023; 25: e47066
KEYWORDS: Governance; digital health data; preferences; Europe; discrete choice experiment; data use; data sharing; secondary use of data
Blom JMC et al. The nexus of social alliances and diverse moral domains: a bedrock for participatory clinical research. Front Med 2023; 10:1250247
KEYWORDS: health data-sharing, clinical trials, decision-making, informed consent, social alliance
Mascalzoni D et al. Ten years of dynamic consent in the CHRIS study: informed consent as a dynamic process European Journal of Human Genetics. 2022; 30:1391-1397
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