Staunton C et al. Ethical and social reflections on the proposed European Health Data Space European Journal of Human Genetics. 2024;32:498-505
DOWNLOAD PDF
DOWNLOAD PDF
DOWNLOAD PDF
KEYWORDS: Governance; digital health data; preferences; Europe; discrete choice experiment; data use; data sharing; secondary use of data
KEYWORDS: health data-sharing, clinical trials, decision-making, informed consent, social alliance