Blom JMC et al. Embedding equity in clinical research governance. Nature Medicine 2026
https://doi.org/10.1038/s41591-026-04232-w DOWNLOAD PDF
Gianluigi Fioriglio, Augmented Vulnerability: Law, Care and Algorithms in theAge of Digital Health, Prassi Sociale e Teoria Giuridica , Mucchi Editore, 2025, no. 21, pp. 1-176
Recent publications
read more
Staunton C et al. Ethical framework for FACILITATE: a foundation for the return of clinical trial data to participants. Front Med 2024; 11:1408600
DOWNLOAD PDF
Frimpong E et al. Need for Speed: Leveraging the Power of Functional Encryption for Resource-Constrained Devices Peer-reviewed Epublication, presented at the 9th International Conference on IoT, BigData and Security (IoTBDS’24)
DOWNLOAD PDF
Staunton C et al. Ethical and social reflections on the proposed European Health Data Space European Journal of Human Genetics. 2024;32:498-505
DOWNLOAD PDF
Biasotto R et al. Public Preferences for Digital Health Data Sharing: Discrete Choice Experiment Study in 12 European Countries. J Med Internet Res 2023; 25: e47066
KEYWORDS: Governance; digital health data; preferences; Europe; discrete choice experiment; data use; data sharing; secondary use of data
Blom JMC et al. The nexus of social alliances and diverse moral domains: a bedrock for participatory clinical research. Front Med 2023; 10:1250247
KEYWORDS: health data-sharing, clinical trials, decision-making, informed consent, social alliance
