Let’s FACILITATE WEBINAR 2024

Mar 14, 2024 | News, Webinars

Maximizing the societal benefit and lasting impact of clinical trials.

Increasing stakeholder engagement and empowering participants to FACILITATE the effective return of clinical trial data

Event Date: Friday, 19 April 2024
Event Time: 2:00 to 3:30 pm CET

Join us for an insightful overview and roundtable discussion of the FACILITATE project and its promising innovations to enable data return to clinical study participants.

We’ll delve into the progress achieved to date and outline our next steps. What sets this session apart is the inclusion of diverse perspectives from key stakeholders. Alongside patient testimonials, we’ll hear from clinicians, representatives from companies, and regulatory bodies. This varied panel ensures a comprehensive discussion that reflects the project’s multidimensional impact and fosters collaboration among stakeholders.

 The webinar will include:

  • An introduction to FACILITATE and its potential innovations.
  • A concise journey through achievements and future steps of the FACILITATE project.
  • A Stakeholders Virtual Roundtable focused on how the project could positively impact their lives (as citizens and patients) or professional endeavors (as researchers, clinicians, pharma, etc).

Panelists

  • Johanna Blom, Professor of Psychobiology Pediatric & Behavioral Neuroscience, University of Modena, and IHI FACILITATE Coordinator
  • Jean Stimola-Sposaro, Director, Bristol Myers Squibb Global Industry, Human Advocate for Equity in Access, and Informed Decision Making

Roundtable

  • Nuala Ryan (Moderator) Clinical Research Consultant and Patient Advocate, Takeda
  • Paweł Wrona, Neurology Specialist, Investigator, Clinical Research Manager, Academic Assistant, Krakow University Hospital
  • Manuel Franco-Martin, Director of the Research Group of Institute of Biomedicine of Salamanca (IBSAL), Spain
  • Dorica Dan,Patients’ Representative, NoRo Center for Rare Diseases, Romania
  • Nadia Malliou, Patients’ Representative, Pain Alliance Europe and Hellenic League Against Rheumatism, Greece
  • Abba Elizabeth Theogaraj, PhD Regulatory Senior Group Director, Roche
  • Andrea Manfrin,Deputy Director of Clinical Investigations, Medicines, and Healthcare Products Regulatory Agency, UK

Ideal Attendees  

All those interested and involved in some way in clinical trials and the management of their data: patients and their associations, clinicians, investigators, nurses, pharma industries, Health Authorities and Regulatory Agencies, Clinical Research Organizations (CRO), etc. –

Register HERE to participate.

FACILITATE webinar may be recorded in whole or in part.  

Recent news

Join Us for the European Patients’ Rights Day 2025!

Join Us for the European Patients’ Rights Day 2025!

Exploring the benefits of health data sharing for patients, healthcare systems, and medical research at the EU level 15 May 2025 | European Parliament, Brussels (Belgium) 📅 Date: 15 May 2025📍 Location: Room A3H1 | European Parliament, Brussels🎟 Register here now...

read more
Access, reuse and sharing health data

Access, reuse and sharing health data

To ensure that Ireland can benefit from data driven research, on 28 March 2025 the Royal College of Surgeons in Ireland (RCSI) convened a one-day conference’s to co-create practical, sustainable solutions that can support responsible and timely data use. This...

read more
Demystifying The EU Health Data Space

Demystifying The EU Health Data Space

On 3 February 2025, Luca Pani, FACILITATE coordinator, delivered a comprehensive keynote presentation at the two-day Clinical Research Data Sharing Alliance-CRDSA’s 2025 Summit, exploring the challenges and opportunities of the European Health Data Space (EHDS). His...

read more

Join our POOL OF STAKEHOLDERS!

Do you want to receive our updates, access information on our activities and events and be in contact with our project?

Latest News

Upcoming Events

Report