This project has received funding from the Innovative Medicines Initiative
The podcast dedicated to the role of the legal and ethical framework behind FACILITATE is finally online! Wenkai Li, legal researcher at Vrije Universiteit Brussel, and Ciara Staunton, legal and ethical researcher at UNIMORE University, go deep into the legal...
Globally, there is a growing emphasis on adopting a participatory approach in clinicalresearch.In this context, FACILITATE aims to redefine the patient's role in the strategy and design ofclinical trials, empowering them with new rights and responsibilities. The...
How can we truly put patients first when it comes to health data? Professor JohannaBlom, Coordinator of the FACILITATE project and Professor of Psychobiology at theUniversity of Modena, shares her vision in this new video released to mark the 19thEuropean Patients’...
The FACILITATE webinar on the Return of Individual Participant Data, which took place on 25 June, is now available online.We invite you to follow our Stakeholders Virtual Roundtable, with 379 people registered and 186 participants (Patients, Companies, Researchers,...
Wenkai Li, legal researcher at Vrije Universiteit Brussel, and Ciara Staunton, legal and ethical researcher at UNIMORE University, go deep into the legal challenges of returning individual clinical data to participants, that are at the core of the FACILITATE project.
FACILITATE Newsletter In this issue you can find: THE RETURN OF DATA IS BY DESIGN ALL WE NEED IS TRUST THE LEGAL SIDE OF DATA RETURN A VERY SOCIAL ALLIANCE A TRUST TO BE BUILT A TERM, ITS PROPER MEANING DOWNLOAD FULL NEWSLETTER PDF
Summary of the Opinion paperThe nexus of social alliances and Diverse Moral Domains: a bedrock for participatory clinical research by Johanna Maria Catharina Blom, Veronica Rivi, Fabio Tascedda, and Luca Pani. Front Med. 2023; 10...
How can we truly put patients first when it comes to health data? Professor Johanna Blom, Coordinator of the FACILITATE project and Professor of Psychobiology at the University of Modena, shares her vision in this new video released to mark the 19th European Patients’...
On June 25, 2025 join us and participate in the FACILITATE public webinar! The event will feature a stakeholders virtual roundtable, where we aim to explore the FACILITATE work on the Return of Individual Participant Data (RoIPD). Alongside patient testimonials, we...
Exploring the benefits of health data sharing for patients, healthcare systems, and medical research at the EU level 15 May 2025 | European Parliament, Brussels (Belgium) 📅 Date: 15 May 2025📍 Location: Room A3H1 | European Parliament, Brussels🎟 Register here now...
Brussels, 24 April 2025 - A thought-provoking panel titled “From Data Return by Design to Ethical Secondary Use: A Scalable Approach to the Governance of Clinical Trial Data, at the 3rd Health, Law and Technology (HELT) Symposium brought together academic, regulatory,...
FACILITATE Newsletter MULTILINGUAL TOOLS READY FOR YOU GLOSSARY UPDATED UPDATES ON CLINICAL TRIALS A PAPER ON ETHICAL FRAMEWORK FACILITATE STEP-BY-STEP DEMISTIFYING THE EU DATA SPACE THE EUROPEAN PATIENT'S RIGHT DAY DOWNLOAD FULL NEWSLETTER...
