How can we truly put patients first when it comes to health data? Professor Johanna
Blom, Coordinator of the FACILITATE project and Professor of Psychobiology at the
University of Modena, shares her vision in this new video released to mark the 19th
European Patients’ Rights Day.
Professor Blom explains: What FACILITATE is and how it contributes to
the European Health Data Space (EHDS). Why returning individual clinical trial data
to participants is so important. How trust, transparency and participant autonomy
must be at the heart of any framework. framework. Why overcoming distrust is key for
meaningful use of health data in Europe.
